(c) 2011 S. Jedlinski & J. Burns - all rights reserved
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Do's & don'ts for living well with PD from day one

  • Develop a positive outlook and a proactive approach to living with Parkinson’s. Research reveals that optimists fare better than pessimists when faced with a health challenge.
  • Adopt a daily exercise regimen to improve strength, balance, flexibility, range of motion, and mobility so that you can continue performing activities of daily living and retain your independence.
  • Do as much as possible for yourself, accepting help only when you truly need it.
  • Don’t set yourself up to fail by placing unrealistic expectations on yourself (e.g. remaining in a job you know you can no longer do).
  • Remain socially active and productive for as long as you can, even if you have to make adaptations.
  • Don’t allow the potential for embarrassment or making others uncomfortable keep you from participating in activities you enjoy.
  • Focus on the things you can do, not on those you can’t.
  • Continue to pursue your goals. Don’t make Parkinson’s the focus of your life.
  • Keep your sense of humor.
  • Make the most of every day. Don’t project about how much worse you may be down the road.
  • Build a support network by helping family and friends understand what living with Parkinson’s is like, and what you need from them. Don’t expect them to read your mind.
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  • Take control of your disease — don’t let it control you.
  • Learn all you can about Parkinson’s so you can partner with your doctor to develop a treatment plan that best manages your Parkinson’s symptoms with the fewest negative side effects.
  • Develop regular sleeping and eating patterns.
  • Take medications on time, and as prescribed.
  • Be open to alternative/complementary medicine (e.g. acupuncture, yoga, massage).
  • Seek out clinical trials for which you may be eligible, that can provide you with early access to promising Parkinson's treatments and drugs not yet on the market. (www.pdtrials.org)
  • Never lose hope for finding a cure.

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