new page or updated info on the page                                                                      (c) 2008 S. Jedlinski & J. Burns - all rights reserved

introduction	home - build it- about us - Sheryl's diagnosis - Jean's diagnosis
personal	friends - support groups - feelings - family
exercise	best medicine - best kinds - recumbent trike- health clubs - sticking with the program - alternative medicines - puzzles exercise links
clinical trials	clinical trials  - trial experiences Jean - coq10 clinical trial Sheryl
advocacy	advocacy -  trial participants rights -  creativity - presenting - make your voice heard - PD Tulip - tulip examples
living well tips	surfing the web -sleep -excursions -balance - physical therapy
et cetera	pd orgs - site map - pdtulip.com - photo-tricks - pd tulip psa

All in the family
My cousin, Jone, is as close to having a sister as I will ever have. It is with a certain irony that we both have an incurable neurological disease:  Jone has Multiple Sclerosis (MS), and I have Parkinson’s disease (PD).   Two years younger than me, she was diagnosed with MS eleven years ago. After I got my PD diagnosis five years ago, we found that we had an even deeper bond between us because of living with a chronic illness.   Jone recently came for a visit. As usual, one of the topics of conversation was some of the coping strategies we use. For instance, when my cousin and her husband go out, she now uses a scooter or a wheelchair to get around. Yes, she can still walk, but using an aide like a wheelchair helps her cope in several ways: She can keep up with the others She doesn’t hold the rest of the party back because she can’t walk as far or as fast She conserves her energy, and has found that she can make it though a day’s activities and on into the evening             Jean & cousin Jone in 2008  top	Jean and her cousin Jone in 1964   When traveling, Jone and I always contact the airline and ask for wheelchair assistance to propel us through security to our departure gate.   We agreed that this was not the life we had envisioned we would have. But we refuse to let pride get in our way of living an active life. We choose to live our lives to the fullest, and if that means using a wheelchair, so be it. We do what we must to get along.                                top
(c) 2008 S. Jedlinski & J Burns all rights reserved

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