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2016
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a little civility goes a long way

 


I am always amused when I hear people describe themselves as "easy-going" when I have found the opposite to be true! So when one of the folks at the NIH said I was "difficult," I had to step back and look at my behavior.

I have had Parkinson's for 11 years now. And I find I get impatient about how I am treated in clinical trials by the clinical nurses and doctors. I now see that behavior I thought of as "being direct" and "standing up for myself," may have been mistaken (often) as pushy, rude, and/or difficult. Of course this was never my intent! Unlike the main character of the "Doc Martin" television series, I really do care about getting along and being considerate of others.

Now when I have a problem, I pause and take a deep breath. I explain calmly about parkinson's symptoms, whether freezing or excess fatigue or falling or … and if any of my courteous requests are politely turned down, I ask if there are any exceptions? Is there anyone else or some other entity to whom I can plead my case?

A little civility, politeness, and understanding of the other person's situation goes a long way.

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And I hope the people whom I encounter will also consider my circumstances when they respond to me.jean

 

PS I have created a very short survey (7 questions), about why people with PD do or do not join clinical trials. Totally anonymous. If you would take a look - I'd greatly appreciate it!

https://www.surveymonkey.com/s/pd_survey_trials

Fox Trial Finder - be part of the solution!

 

email us directly at: Sheryl@pdplan4life.com

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Without express written consent, this material may only be used for your own personal and noncommercial uses which do not harm the reputation of PDPlan LLC, provided that you do not remove any copyright. To request permission to reproduce, please contact PDPlan LLC at Sheryl@pdplan4life.com

blogger partner WPC 2016 in Portland