Beyond PDPlan4Life: What else are we doing?

While PDPlan4Life.com will always be the center of our universe and the root of our PD advocacy, awareness, and education projects, we continue to involve ourselves in a variety of ways in multiple PD causes we support. This page lists some of the "other" things we have done individually and together.

Sheryl

• 2014 Presentation by Sheryl in New Orleans: "Are we lucky or what? Living well with Parkinsons"
• Sheryl's blog about living well with PD
• Sheryl's YouTube account for her video uploads
• Doctor patient relationships - part 2 — Sheryl and Dr Comella's presentation about their relationship

Jean

• Jean at NIH is interviewed about clinical trial participation
• Jean's Q&A about ethics and clinical trials interviewed by Kenneth Getz
• Jean's blog about life with PD, (frequently about clinical trials she is in)
• Jean's 2014 interview in the Parkinson's Unity Walk blog
• youtube video of Jean taking a pie in the face for PD.
• Jean mentioned in in Neurology News about patients as resources
• Clinical trial participation survey created to compile PWP experiences (good & bad) about clinical trial participation

Jointly

• Bill of rights for clinical trial participants
• PDTulip—its history and how to buy pins
• pdcalendar—means by which the PD commmunity can easily see what is going on & help minimize avoidable scheduling conflicts
• AAN 2010 brain contest video—Friends face Parkinson's
• presenters WPC2013 in Montreal