new page or updated info on the page (c) 2008 S. Jedlinski & J. Burns - all rights reserved
new page or updated info on the page
(c) 2008 S. Jedlinski & J. Burns - all rights reserved
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We are two women from different parts of the country and different backgrounds whose paths crossed because we share an incurable disease. We met and became friends through an on line patient advocacy group. Along the way, we discovered we had many things in common, not the least of which are a love for chocolate malts, shopping, and talking on the phone. We also discovered we had complementary skills in writing and design and decided to use these to create pdplan4life, as our way of “giving back” to the Parkinson’s community for the help we received early on. We practice what we preach: exercising religiously, advocating on behalf of Parkinson’s issues, and participating in clinical trials. |
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Sheryl is a professional writer living in the Chicago suburbs with her husband Tony. Their two adult sons live in the city. Diagnosed with PD in 1998 at the age of 45, Sheryl is active in several different Parkinson’s organizations, serving on the Board of the Midwest chapter of the American Parkinson’s Disease Association (APDA).
A strong advocate for embryonic stem cell research and clinical trial participants’ rights, Sheryl’s letters to the editor regularly appear in newspapers across the country. As a member of the Parkinson Pipeline Project, she co-authored “Ethical Issues in Clinical Neuroscience Research: A Patient Perspective,” which appears in the July 2007 issue of Neurotherapeutics: The Journal of the American Society for Experimental NeuroTherapeutics .
Sheryl has participated in several exercise-related clinical trials and in the original CoQ10 trial. |
Jean is retired and lives with her husband in a suburb of Phoenix. She is a former software trainer and web developer. Diagnosed in 2003 at the age of 51, Jean is active in several Parkinson’s organizations including the Parkinson’s Action Network (PAN), and the Arizona Chapter of APDA (AZ-APDA), for which she is webmaster.
She was honored by AZ-APDA in 2006 as its distinguished volunteer, and PAN awarded her the 2007 Murray Charters Award for outstanding service to the PD community.
Jean uses art to spread awareness of Parkinson's. Examples of her work can be seen in neurology offices across the United States.
Jean is heading a grassroots movement for a national symbol for Parkinson's disease: the stylized tulip at right, designed by Karen painter, of Washington state. This symbol will represent all people with PD - without regard to organizational affiliation. Read their story.
Jean participated in the CEP-1347 clinical trial as well as four other studies. |
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We are available to speak at PD events in your community.
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